Thursday, 28 January 2010 11:35

Screaming and Seizures Return


After almost three months of minimal to no seizures, Beth started screaming for about 1-2 hours in the evening, around 6pm.  She has done this once before and we believe it is related to constipation/wind pains.  While she is generally not constipated, it appears every so often things get blocked up for some reason.


Anyhow, during this time she has also had an increased incidence of seizures returning, which has been getting worse.  We gave her a couple of enemas to get things moving again, which seem to have worked, but everything came to a head last night, when first of all she vomited he dinner and night bottle up all over our bed and floor, and then had seizures every time she tried to go to sleep over a 3 hour period (1-4am).  We ended up giving her an extra dose of Mogadon (Nitrazepam) which did help her to sleep after about half an hour.


Please pray her seizures will come back down and under control again, she is very tired and lethargic due to lack of sleep - as we all are - we reverted back to sleeping in shifts but still didn't get much.  She is a little off her food as well, and to top it all off, somehow the nappy leaked this morning and wet our bed again, so we have a huge backlog of soaking and washing....