One of the first questions we asked and continued to ask was "why us?" and "why Beth?" "It's not fair" was another one that was common as well.  We all struggle to understand why many things happen. 

We found comfort in an account about a man blind from his birth.  People assumed that he was blind because either he or his parents had done something terrible or wrong...

John 9:1 "And as Jesus passed by, he saw a man which was blind from his birth.  And his disciples asked him, saying, Master, who did sin, this man, or his parents, that he was born blind?  Jesus answered, Neither hath this man sinned, nor his parents: but that the works of God should be made manifest in him."

From this we can be sure of a few things in relation to those born with problems and issues - that these things are not sent of the Lord as punishment for sin - past or future, child or parents - if this was the case we would all be born with many such issues as none of us nor out parents are sinless;
- that the Lord did not desire that this man should remain this way - in this case he healed him then and there, but even if not, we also know that one day we will be "changed" from this vile body to one incorruptible and whole;
- finally that the works of God should be manifest - that through these situations and circumstances there is a great opportunity for the Lord to work and bring forth his love, grace and power.

Our problems and uncertainties are opportunities for God to work.  They are opportunities to strengthen our faith through finding his Faithfulness despite the situation.

So why us?  Because the Lord wants to bring a greater us and Beth, into something even greater and fuller.  Please read the encouragement about Bethany (Resurrection), which sort of flows on from here.