Beth has started to get Tonic seizures, or "stuckey" ones we call them.  She has been stable on Vigabatrin for a little while, with only small seizure activity which has been managable for her.  These new seizures show a bit of a change in pattern, and our Neuro advises that this may require a new drug to treat - Epilim - as Vigabatrin is more specifically for infantile spasms, not tonic seizures.  He has given us the scripts necessary and if seizures get to a more significant level we will try the new drug.

Beth has been going well folks, but is still having seizures.  Medications have been changed, weaning off phenobarb and prednisone, and now only on vigabatrin.  I have updated the seizures page with information and also added in a couple of other things we have been looking at - fish oil supplement, magnesium supplement and also now some essential oils we are going to try.  It has been great to have Beth a lot more active and responsive now on the vigabatrin, which doesn't seem to be too drowsy or mood altering.  We even had a small couple of smiles the other day, praise the Lord.  However, just of late it appears her seizures could be changing again.  Although only having short seizures generally, she is now starting to get "stuck" in the spasms - i.e the spasm isn't just a "clench and unclench" and repeated, it is a "clench and hold" for a period before unclenching then repeated, which is much more distressing to Beth - she cries and is quite distressed.  Keep her in prayer for wisdom about what to do - hopefully the essential oils may work, otherwise the neurologist has it in mind to try valproate (Epilim) as another drug to add to her reigeme... however, it too has a variety of side effects.